A Mother’s Wish is so grateful for the members at the Great Oaks Country Club for the generous donation from their members. These funds will be applied directly to the families in need of assistance and to the research needed to get Crohn’s disease cured! http://www.greatoakscc.com
A big thank you!
We hope you will join us in celebrating Giving Tuesday. We are a 100% volunteer nonprofit organization which means 100% of your donation goes to support our programs and assist those suffering with Crohn’s Disease & Ulcerative Colitis. More on our programs here.
Our Mission is to support individuals & families battling Crohn’s Disease and Ulcerative Colitis, to fund research to find a cure and be a persistent resource for the betterment of our IBD community.
Thank you for your consideration!
With gratitude,
Your friends at A Mother’s Wish Foundation
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Hi Laura,
I’d like to share with you the terrific news that Nichole M. Belle, MD, PhD (cc’ed) https://www.pennmedicine.org/providers/profile/nicole-maloney-bellehas been chosen by the selection committee as the inaugural recipient of the “A Mother’s Wish Foundation Prize in IBD Research”. She is an outstanding young investigator studying important facets of intestinal epithelial and immune function related to IBD. Christian Hyde will be providing additional information about Nichole that you can share with the members of your Foundation. Nichole would be delighted to participate in your fund-raising event in the fall.
If you have any questions, please let me know and thanks again to you and your Foundation for the gift supporting this award program in IBD research for the Perelman School of Medicine at the University of Pennsylvania.
Best, Gary
——————
Gary D. Wu, MD
Ferdinand G. Weisbrod Professor in Gastroenterology
Director, Penn Center for Nutritional Science and Medicine
Co-Director, PennCHOP Microbiome Program
Co-Director, Center for Molecular Studies in Digestive and Liver Diseases
Perelman School of Medicine, University of Pennsylvania
915 BRB II/III, 421 Curie Blvd, Philadelphia, PA 19104
Phone: 215-898-0158
Fax: 215-573-2024
We would FINALLY like to announce our “2nd annual” A Mother’s Wish 5k Run/Walk! We have missed you all since our event in 2019 and cannot wait to run/walk with you again this year! Please plan to join us on October 1st, 2022, so that we can work together to help the 10 million people living world-wide with Crohn’s Disease and ulcerative colitis.
This event, which includes a 5K run and 1-mile walk, is a family-friendly day of giveaways, raffles, entertainment, refreshments and so much more!
When: Saturday, October 1st 2022
*Registration begins at 8:15 am
*Preston from WMMR https://wmmr.com/shows/preston-and-steve/ begins the fun at 8:50 am
*1 mile walk begins at 9:00 am Heebner Park 1 Mile Course Map
*5K starts at 9:15 am! AMW Heebner Park 5 K Route_
Where: Heebner Park, Worcester PA – 1721 Valley Forge Road, Collegeville PA 19426 https://www.worcestertwp.com/departments/parks-recreation/parks-trails/
GET YOUR TICKETS NOW!
Early Bird Registration Special ONLY $25 when you register before July 1 ,2022
$25 (ticket prices July 2 through September 30 – $30)
Race Day – $40
REGISTER YOURSELF & YOUR FAMILY HERE:
https://runsignup.com/Race/PA/Collegeville/AMothersWish5KRunWalk
Other GREAT Stuff: Family friendly, t shirt (register before 9/1 to guarantee yours!), refreshments, water stations, raffle baskets, prizes and SPECIAL GUEST Preston Elliot from 93.3 WMMR’s Preston & Steve show!
Stone Attic will be playing live music!http://www.stoneattic.com
CLICK HERE TO BE A SPONSOR:
https://forms.donorsnap.com/form?id=aae7e290-921d-494f-a005-dff926d3f1de
The race will be professionally timed by the Bryn Mawr Racing Co! Awards will be given to overall and age groups.
Stay tuned for more details but get your family registered NOW! We can’t wait to spend this special morning with you!
If you, or someone you know, would be interested in sponsoring this event, volunteering, or donating to our raffle, please send an email to amotherswish@comcast.net
Our Mission: A Mother’s Wish Foundation’s mission is to support families and fund research to find a cure for IBD. One way we are doing this is with an endowment to the Perelman School of Medicine, University of Pennsylvania. Through your generous donations, we are able to support the teams of doctors at PENN that are working tirelessly to both find a cure, and to improve medications and treatments to make a better life for all of those living with IBD.
Sincerely,
A Mother’s Wish Board Members
OUR AMAZING SPONSORS:
Friend Sponsors:
Jackie Adorno & Doug Carlson Team of Long & Foster Gold team logo
Produce Junction-Matt Adorno https://www.producejunction.com/
Gary Waxman http://www.morgcpa.com/
David Swartz Carisma Auto Specialties http://Www.dents.repair
Crohnie :
Germantown Title Company http://germantowntitle.com
Bronze:
Windmill-Susan and Richard Tressider
DICCIANNI FINANCIAL GROUP INC https://dfgpa.com/
IN KIND DONATIONS:
Neil Suhre-Photographer
Preston Wilson-Emcee
Stone Attic-Band
Lori & Karl-Ocean City Beach Front Condo
Preston from WMMR
Charisma Auto Specialties
DONATIONS-THANK YOU!
Doug and Kate Marshall
Tom & Jamie’s wedding donations
Caryl Raport
Andrea Bristol
MaryAnn Kliamovich
Kathryn Head
Thomas Volpini III
Michael Donahue & Jacqueline Morrill
DONATIONS FOR OUR BASKETS:
Richard and Caryl Raport-Party Company
Dr. Gregory Hillyard-Oral B Electric toothbrush
TAP 24
LA BELLE EPOQUE Wine Bistro
Stephen’s on State
WIN Signature Restaurants
Iron Hill
Spasso Italian Grill
We hope to be back in person to see you all soon. In the meantime, we can’t thank you enough for pivoting with us while we navigate the times we find ourselves in today.
We want to make a big shout out to our generous friends who donated to our 2021 fundraising efforts:
DONATIONS:
WMMR-Preston Elliot
Germantown Title- Dana Santangelo & Mari Gates
Diccianni Financial Group, Inc.
John & Molly Cartmill
Brother Efrain Rivera
Jacqueline Adorno
Patricia MacCorkle
Lauren $ Neil Suhre
Jacqueline Morrill
Kathryn Head
Catherine (Kit) McCarty
Maria Bialek
Renee Petersohn
Doreen O’Neill
National Collegiate Scouting Association
Sabrina Marsilio
Mary Ann Kliamovich
Marquette Associates
Maria Popp
TO OUR FRIENDS THAT HELPED MAKE OUR AMAZING BASKETS FOR THE AUCTION:
Susan & Charles Hoffmann-Italian Gourmet Basket
Lauren & Dimitri Gianneas-Gift card to Double Decker
Alicia Adorno Martinelli-Prive’ Salon at Wayne
Kim V. Heyman, Esq.-Luxury Soaps
Bala Judaica and Jewelry-Menorah Basket, earrings
Richard Raport-all the theme baskets
Lauren Suhre-Amelia Paris Gift Card
Colleen & Kevin Hopkins-Jo Malone Candle
Erica Scheer-Soccor
Marissa Magnatta-Philly items
John Brazier-Phillies Basket
Today, A Mother’s Wish Foundation, along with all of you, celebrates World IBD Day. This is a day we hope to raise awareness of Crohn’s disease and ulcerative colitis on behalf of the more than 10 million people worldwide living with inflammatory bowel disease (IBD).
Our foundation works tirelessly to raise awareness so that the world can truly understand how unbelievably debilitating Crohn’s Disease and ulcerative colitis can be. And we simply cannot do that without your support.
So today, if you know and love someone with IBD, please help them get one step closer to living a life without this chronic, life-long illness by doing one or all of the following:
💟research and understand the true meaning of IBD (inflammatory bowel disease)
💟send your loved one a special note letting them know you are proud of their fight against IBD
💟like & share this post as well as encourage your friends to follow us
💟reach out to us letting us know how you would like to help by getting involved with our foundation (p.s. our foundation’s board is made up of local moms whose life has been greatly impacted by IBD and we’d love to have you join us!)
💟commit to joining us this fall for our virtual auction in October or in the spring of 2022 for our next run/walk
💟head to www.amotherswishfoundation.org to make a donation today and learn about all the ways we support individuals and research
#amotherswish
#supportingthosewithIBD
#crohnsdisease
#ulcerativecolitis
#crohns
#colitis
#IBD
#inflammatoryboweldisease
#amotherswishfoundation
Emilia Talotta passed away on April 1, 2021 at the age of 97. She was the beloved wife of the late Giuseppe, devoted mother of 3, loving ‘Nonna’ to 9 grandchildren and 14 great grandchildren. She is the grandmother of our board member, Sabrina, as well as the namesake & great grandmother to our own Crohn’s warrior, Emilia Marsilio. Additionally, Emilia Talotta was the grandmother to Crohn’s warrior, Cathy Capper, and Colitis warrior, Jenn Talotta.
In lieu of flowers the family requested contributions be made to A Mother’s Wish Foundation. The outpouring of love and support has been astounding. We thank you all for your donations which help to support ongoing research and education!!
This is my son Carter. He loves to play basketball and watch sports. He is happiest when spending time with his family and friends. Carter was diagnosed with Crohn’s disease in January 2016, at just 5 years old. His courage and strength are what inspired me to do this race. If you have a moment, please read his story below, and consider donating. 100% of money raised from this race will go to A Mother’s Wish Foundation, a local non-profit who has helped Carter, and my whole family, through the most difficult of times.
In April of 2015, just before Carter turned 5 years old, we noticed he began to look and act differently. He had no energy and lost interest in playing with friends because he was too tired. His eyes were sunken and dark and he was not gaining any weight. By May, he was complaining daily about stomach aches. Thankfully, his pediatrician, Dr. Brogan, was as concerned as we were and referred us to CHOP’s hematology/oncology department for more testing.
By the fall of 2015, Carter had entered kindergarten and we still had no answers as to why our son was so sick. He was receiving weekly IV iron infusions and was sent to CHOP’s GI Department. Here we met Dr. Grossman and Dr. Conrad who performed an array of tests including an upper endoscopy, a colonoscopy, dexa-scans, video endoscopy (video capsule) and barium x-rays of his abdomen. Finally, on January 8th, 2016, Dr. Conrad called with the news that Carter had Crohn’s Disease. This diagnosis was very tough to hear as parents, but at least now we had an answer.
Since the day we received the news that our son had an incurable, life-long chronic illness, our lives changed. Carter began a medication regimen of swallowing four, sometimes five, pills a day. We made extreme changes to our diets to include only whole foods and to avoid any foods with additives or preservatives.
My son took every test, pill, long drive to CHOP, weekly iron infusion, and diet change in stride. He has learned which foods are going to help him heal and which are going to cause him to flare. Carter has shown us all what true strength and resilience is. He has kept a positive attitude through some pretty tough times. He is why I run this race.
For more information about A Mother’s Wish Foundation, please go to https://amotherswishfoundation.org/.
I am pleased to say that all of our friends, family, and sponsors are still with us! a big round of applause for the love that has started in 2021!
THANK YOU SO VERY MUCH:
Walter & Nancy Rogers
Bernard B Rotko, MD Foundation
Network For Good
Merck
The Marsilio Family
Efrain Rivera
Betsie and Andy from Frame Station Gallery
Mari Gates and Dana Santangelo- Germantown Title
Jeff Wickersham
Charlene M Kliamovich
Bernice M Kliamovich
College Panhellenic Counsel-Sarah Hedley
Vittoria Dean
Margaret Staino
Carol Tornetta
Maria Nevelson
Rebecca Galati
Jennifer Brownstein
We have some very exciting news from one of our warriors, Emilia!! She has successfully collaborated on a book geared towards explaining Crohn’s disease to children.
Emilia is the daughter of our Director – Clinical Trial Specialist. She was diagnosed with Crohn’s disease (CD) in 2017 at 8 years old. She is currently 12 years old and in middle school.
As a parent/caregiver of a chronically ill child, we are faced with many difficult questions, for which our little loves think we should know the answers to. “Why is this happening to me? Why can’t I be like other kids my age? How do I make the pain stop?” We parents often have these same thoughts and questions circling in our heads. “Why my child? How much more of this pain can they take? How can I help them to cope?” For Emilia, there hasn’t been any medication that stops the pain when it starts, but being close to mom helps. Sabrina (trying to find a glimmer of hope) has often told Emilia that perhaps Crohn’s was a special gift that would enable her to help other children.
In 2019, while at a pharmaceutical industry conference, Sabrina met Ryan, a director in marketing for a company named StudyKIK. He had written a children’s book on Alzheimer’s (Why Grandma Keeps Forgetting: An ALZ Story). Sabrina asked if StudyKIK would be authoring any books on CD and coincidentally they were, and he asked if Emilia would be interested in collaborating! Emilia was excited to say the least.
Emilia provided her personal experience for the initial draft of the book and then provided edits and comments thereafter. She would light up when there was a draft ready for her review. Emilia truly believes this book was the first step in her helping other children who suffer from CD.
Why Emilia Wasn’t Feeling Well: A Crohn’s Disease Story went to KickStarter in 2020 and was fully backed! The company printed and delivered copies to all who backed the campaign.
The book is now available on Amazon: CLICK HERE TO PURCHASE
We are so proud of Emilia and what she has accomplished so far, and can not wait to see what is next for her! Thank you to Ryan Williams and the StudyKIK team for giving her this opportunity!
